Official Website of Laura Bruen, New York Photographer, New Jersey Photographer & Artist
Tommy Lindsey suffers from Tuberous Sclerosis. I was blessed to be able to be a part of this event, which was hosted at Nicotra’s Ballroom in Staten Island, New York.
Tuberous Sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin, and lungs. You will see it referred to both as tuberous sclerosis (TS) and tuberous sclerosis complex (TSC). The term TSC is used in scientific literature to distinguish tuberous sclerosis complex from Tourette’s syndrome.
The disease affects some people severely, while others are so mildly affected that it often goes undiagnosed. Some people with TSC experience developmental delay, intellectual disability, and autism. However, there are also many people with TSC living independent, healthy lives who enjoy challenging professions such as doctors, lawyers, educators, and researchers. (Source: TSC Alliance).
For more information about Tuberous Sclerosis Complex and how you can help, please visit Tuberous Sclerosis Complex (TSC) Alliance.
Actress Julianne Moore (left) has become an advocate for TSC and has participated in several events. Here she is seen with Tommy, Tom, and Peggy Lindsey.
The Lindsey Family with Julianne Moore. As the story goes, Big Tommy chased her down in the streets of NYC and enchanted her with stories of Little Tommy. As a result, she has become a wonderful help to the cause.
Tommy is very close with Julianne Moore.
Tommy & Grandma
Nicotra’s Ballroom in Staten Island, New York
Nicotra’s Ballroom in Staten Island, New York
Peter Pizza in Staten Island, New York
Cast of Chopped, including my friend Robert Bermeister from my hometown with Julianne Moore – Nicotras Ballroom in Staten Island, New York
Staten Island Band Screaming Broccoli
Julianne Moore with Screaming Broccoli – Nicotras Ballroom Staten Island, New York
Winners!
These cakes from Sweet Sue’s Specialty Cakes were incredible.
Pepperjack Grill representing.
Julianne Moore speaks to Tommy about TSC.